PPC SERIES Compatible with Life: Rethinking Care of Children with Trisomy 18

Many patients diagnosed with Trisomy 18 are living longer than once predicted. What has changed in this population? This session will highlight current research on Trisomy 18 and explore opportunities for providing meaningful care in a patient population fraught with difficult decision-making and uncertain outcomes.

OBJECTIVES:
1. Describe clinical features and contemporary outcomes for children with Trisomy 18
2. Discuss factors influencing decision-making for both families and professionals
3. Identify challenges in providing medical care to children with Trisomy 18 that is congruent with the family’s identified goals

About the presenters:
Deana Deeter, CRNP, CHPPN, CPON, RN-BC
Penn State Hershey Children’s Hospital
Hummingbird Program Manager

Deana Deeter graduated from The Ohio State University with MS in Nursing in 2006 and Bachelors in Agriculture in 2003. Deana worked for 8 years as a nurse practitioner in pediatric palliative care, and prior to that worked for almost 5 years as a nurse practitioner in pediatric hematology/oncology. Deana completed the Pediatric ELNEC Train the Trainer program in 2009, and have taught portions of the course for the past 6 years. She holds certifications in pediatric hospice and palliative nursing (CHPPN), pediatric oncology nursing (CPON), and pain management nursing (RN-BC).

Nicole Hahnlen RN, CHPPN
Penn State Children’s Hospital
Hummingbird Program Nurse Coordinator

Nicole Hahnlen is the nurse coordinator of Hummingbird Program, the pediatric palliative care program at Penn State Children’s Hospital. She is an executive board member of the Pediatric Palliative Care Coalition. Nicole holds a B.S. in nursing from the Pennsylvania State University and a B.A. in family studies from Messiah College.