PPC SERIES – Don’t You Forget About Me: Caring for Siblings

“Who is coming for me today?” When there is a chronically and/or terminally ill child, siblings become accustomed to the focus placed on the sick child by the adults around them. They are often silent sufferers and disenfranchised grievers because, within the context of this scenario, their place is poorly defined. Even more so, most clinicians are not equipped – whether by time, resources, or education/experience – to support the siblings within the family unit. With research demonstrating that 1 in 7 Americans will lose a parent or sibling before they turn 20, there has been growth in programs that provide developmentally-appropriate education surrounding illness, death and support through the journey. It is time to place emphasis on the dialogue and training to support these beloved children. This webinar will highlight the experiences of siblings, as told by the siblings themselves, and will examine the evidence-based interventions, strategies, and obstacles towards an effective framework of support that empowers and honors siblings.

Objectives:
1. Increase understanding of the experiences and perspectives of siblings.
2. Identify elements, approaches, and curriculum in supporting the needs of the sibling population.
3. Increase understanding of patterns of communication and collaboration to shift from intent to intentional.

About the presenters:
Yelena Zatulovsky, MA, LCAT, MT-BC, CCLS, HPMT
Vice President, Patient Experience
Seasons Healthcare Management, Inc.
Yelena Zatulovsky is the Vice President of Patient Experience at Seasons Hospice & Palliative Care with over 15 years of bedside experience working with patients and families at the end-of-life. In addition to hospice and palliative care, Yelena is Licensed as a Mental Health Practitioner, board-certified as a Child Life Specialist, and holds an advanced designation as a Hospice & Palliative Care Music Therapist. Along with Yelena’s clinical work, Yelena currently serves on the ChiPPS (NHPCO’s Children’s Project on Palliative/Hospice Services) Advisory Council, served on the Children’s Advisory Board of HPCANYS, contributed a training module to the HIPPC (HPCANYS Initiative for Pediatric Palliative Care) curriculum, has multiple published articles, and has presented at multiple conferences nationwide. In 2011, Yelena’s music therapy work, along with that of several colleagues, was featured in the New York Times and in 2014 Yelena was honored as one of Jewish Week’s 36 Under 36.

Dana Richmond, OT
Bereaved Sibling
Kessler Institute for Rehabilitation
Founder of Elle Foundation
Dana Richmond is an Occupational Therapist and founding member of the Elle Foundation. Dana has worked in a variety of settings with many different populations to become a well rounded therapist. Currently working in inpatient rehab at Kessler Institute for Rehabilitation in West Orange NJ. The mission of the Elle Foundation is to create memories of joy for children battling a recurrence of cancer. As a sibling of a child who has passed away from cancer Dana is looking forward to sharing her personal experience to raise awareness and give siblings a voice.