When seeing a child with medical complexity, often only the tubes and attached medical devices are seen and not the child. In Palliative and Hospice Care, one of our strongest tenets is to help our patients live until they die, focused on quality of life. However, if a child has a challenging medical condition or disability, assumptions may be made as to what a quality life can or does entail. Utilizing the Models of Disability and personal anecdotes, the presenters will illustrate how we can better provide equitable and inclusive care for all our patients and their families.

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