Spirituality in Children & Families Facing Serious Illness
Spiritual Care is one of 8 domains of quality palliative care as defined by the National Consensus Project Clinical Practice Guidelines. This session will describe the spiritual needs of children and their families as they face serious illness and the end of life.
1. Describe research related to spiritual needs of children and their families facing serious illness and death.
2. Identify opportunities for improving the assessment of spiritual needs.
3. Recognize spiritual care as essential for all clinicians involved in pediatric palliative care.
Betty Ferrell, RN, PhD, MA, FAAN, FPCN, CHPN has been in nursing for 42 years and has focused her clinical expertise and research in pain management, quality of life, and palliative care. Dr. Ferrell is the Director of Nursing Research & Education and a Professor at the City of Hope Medical Center in Duarte, California. She is a Fellow of the American Academy of Nursing and she has over 450 publications in peer-reviewed journals and texts. She is Principal Investigator of a Research Project funded by the National Cancer Institute on “Palliative Care for Patients with Solid Tumors on Phase 1 Clinical Trials” and Principal Investigator of the “End-of-Life Nursing Education Consortium (ELNEC)” project. She directs several other funded projects related to palliative care in cancer centers and QOL issues. Dr. Ferrell was Co-Chairperson of the National Consensus Project for Quality Palliative Care. Dr. Ferrell completed a Masters degree in Theology, Ethics and Culture from Claremont Graduate University in 2007. She has authored eleven books including the Oxford Textbook of Palliative Nursing (5th Edition, 2019) published by Oxford University Press. She is co-author of the text, The Nature of Suffering and the Goals of Nursing published in 2008 by Oxford University Press and Making Health Care Whole: Integrating Spirituality into Patient Care (Templeton Press, 2010). In 2013 Dr. Ferrell was named one of the 30 Visionaries in the field by the American Academy of Hospice and Palliative Medicine. In 2019 she was elected a member of the National Academy of Medicine.
Gay Walker, RN, CHPNN is the former Program Director for Trinity Kids Care Pediatric Hospice in Los Angeles, California and currently a consultant and speaker for pediatric palliative and end-of-life issues. With over 30 years of nursing experience, Ms. Walker has performed successfully in a wide variety of medical environments and management positions, including supervising clinical services at Rush Presbyterian Hospital in Chicago.
For the past 20 years, she has been actively involved in leading-edge hospice and palliative care services for children and their families. Ms. Walker continues to develop productive and effective hospice programs, services and curriculum in conjunction with the industry’s leading innovators. She has published the Oxford Textbook of Palliative Care Nursing, the recent Springer publication of Handbook of Long Term Care of the Childhood Cancer Survivor, the International Journal of Palliative Nursing, and the Journal of Palliative Medicine; including an abstract for the general assembly of AAHPM/HPNA in the developing field of spirituality and children. She has been an ELNEC faculty since 2006 and enjoyed the privilege of teaching throughout the world regarding the needs of seriously ill children and their families. She recently received Compassionate Bereavement Certification.