Providers and parents want to make the “best” decisions for a child with a serious illness. Ideally in shared decision-making, providers and families each have space to give and receive information, articulate and consider the options before them, and to discuss their thoughts and feelings honestly and respectfully.

This process is not straight-forward and is filled with thinking and logic alongside emotion and hope.

How can we participate meaningfully? How can we deconstruct what families hear and think? How can we facilitate/share/enhance the best decision-making on behalf of the beloved, unique child sometimes in the face of parental indecision and prognostic uncertainty?